Jane & Marcus McDaniel
Our rare disease story began in 2014 when Marcus was diagnosed with a neurological disease known as Trigeminal Neuralgia. Running has proven to be a positive outlet while we continue to navigate the difficult world of rare diseases. We founded SeeRareRun in 2019 to combine our passion for running with our desire to spread positivity to others in the rare disease community.
One in ten Americans suffer from a rare disease, and there are more than 7,000 recognized rare diseases and disorders. SeeRareRun is dedicated to helping this widespread community. Our mission is to make a positive, lasting impact on the rare disease community and provide rare disease patients and their families “improvement through movement.”
We are a 501(c)(3) nonprofit organization that encourages participants from all parts of the country to use physical activity, namely walking and running, to build awareness, educate others, and generate funding to support the rare disease community. Proceeds from our virtual race and additional donations used to support to the education, advocacy, research, and patient services programs at the National Organization for Rare Disorders (NORD).