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© 2019 SeeRareRun

SeeRareRun is a Virtual Race to Help Raise Money and Bring Awareness to the Rare Disease Community

Learn How You Can Contribute

"We founded SeeRareRun in 2019 to combine our passion for running with our desire to spread positivity to others in the rare disease community".

 

How To Run Our Virtual Race

1. Choose your Distance: 5k or 5 miles

2. Sign up for the Race

3. Run or Walk Your Race in any Place of Your Choosing

4. We Donate the Race Proceeds to NORD

Donate to SeeRareRun Without Running

All Our Proceeds Are Donated to NORD

Help raise awareness for individuals living with rare diseases by participating in our virtual race. Your support will benefit the National Organization for Rare Disorders (N.O.R.D.). N.O.R.D. is an American nonprofit organization that provides support for these individuals and their families through educational programs, researching funding, advocacy, and patient financial assistance. 

 

About SeeRareRun

Jane & Marcus McDaniel

Our rare disease story began in 2014 when Marcus was diagnosed with a neurological disease known as Trigeminal Neuralgia. Running has proven to be a positive outlet while we continue to navigate the difficult world of rare diseases. We founded SeeRareRun in 2019 to combine our passion for running with our desire to spread positivity to others in the rare disease community. 

One in ten Americans suffer from a rare disease, and there are more than 7,000 recognized rare diseases and disorders. SeeRareRun is dedicated to helping this widespread community. Our mission is to make a positive, lasting impact on the rare disease community and provide rare disease patients and their families “improvement through movement.”

 

We are a 501(c)(3) nonprofit organization that encourages participants from all parts of the country to use physical activity, namely walking and running, to build awareness, educate others, and generate funding to support the rare disease community. Proceeds from our virtual race and additional donations used to support to the education, advocacy, research, and patient services programs at the National Organization for Rare Disorders (NORD). 

Celebrate World Rare Disease Day!

SeeRareRun Virtual Race | Feb 29, 2020

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